Recently I attended the opening ceremony at our local relay for life. I found myself holding back tears as I listened to the incredibly moving speeches about survival, determination, strength and loss. This year marks 20 years since I fought my own battle with cancer. A battle that I was fortunate enough to win. It's occasions like this that I am reminded of how very lucky I am. Despite my foot surgery leaving me unable to participate in the carers and survivors walk, just to be at the track, feeling the incredible energy of everyone around me was food for the soul.
As I drove home from the event the feeling of empowerment evaporated as I began to think about the huge difference between the two health issues God decided to throw my way. Whilst cancer robbed me of the ability to become a mum, I survived. There is a cure. Every second charity is dedicated to raising money for research into early detection, prevention and treatment of cancer. Everyone knows someone who has had cancer or has had cancer themselves. Sadly because of this the awareness is there.
There is currently no cure for NF or effective treatment options and CTF is the only charity in Australia that supports children and adults with NF and their families.
Cupids Undie Run is the biggest fundraiser for CTF and yet only a small handfull of people have ever heard of it. Rachel and the team at CTF do an amazing job with the event working tirelessly to ensure that everyone with NF has a reason to hope for a brighter future.
Truth is I wouldn't wish either on anyone.
What a wonderful world we would live in if neither existed. The only thing I do wish is that both charities were recognized equally so everyone out there with NF has hope that one day a cure will be found.