Sneaky the Penguin


I would like to introduce to you my mascot, my new best friend, Sneaky the Penguin. 

Sneaky and I are entering into a life journey of creating awareness for a silent but debilitating illness. It is my intention to take Sneaky along for the ride as I tick off my bucket list and along my journey educate others to the seriousness of Neurofibromatosis.  It would be my dream to raise enough money for research into a cure for all types of Neurofibromatosis. We all take for granted the most simplest things in life.  It is only when they are taken away that we realize the true value.

Please come along with me on my journey. Feel free to make suggestions on locations that Sneaky and I can participate in some random destination selfies. I will upload pics of my adventures.  It would be greatly appreciated if you could make a donation to this cause as all money raised will go directly to research into Neurofibromatosis. 

"Together..... Improving the lives of those affected by Neurofibromatosis.....Together....Reaching for a cure".