May is NF awareness month. NF affects more people than Cystic Fibrosis and Muscular Dystrophy combined although most people have never heard of it.
I am very proud that I played a small role in spreading awareness during May. I submitted my story to the Children's Tumour Foundation Australia who posted it on both their web site and Facebook. The power of social media is amazing! I was overwhelmed with the support I received when people read the article and the post was "shared" by a number of family and friends.
The Children's Tumour Foundation Australia then arranged for the Cranbourne Leader to write an article. Although the story was slightly misconstrued the word was out about NF and my journey. I had gone from a being a private person keeping everything close to my chest to sharing my story with the world (ok maybe just to Cranbourne!!) overnight.